Sunday, August 3, 2014
Recently, my husband was diagnosed with a very rare lung disease called Pulmonary Alveolar Protienosis. Little is known about it, in fact - he has had difficulty breathing for some time now. I'm talking years. Every time we would go to the doctor/emergency room, x-rays were taken and he was told he either had pneumonia or bronchitis. After seeing multiple doctors we decided enough was enough and I went in search of the best doctor's in Houston Medical Center. We found a GREAT team of doctor's and he was diagnosed in April with this disease. Since then we have had multiple trips back and forth to the doctor with surgeries and weeks at a time hospital stays. He was placed on oxygen 24/7 and was told to he should not go back to work (a job he loved). We applied for disability and have been reduced to a one income family.
My blog/letter writing slowed as this became a time consuming medical condition. He recently started the account below to help with extensive medical bills and travel cost back and forth to doctor's. We live 2 1/2 hours away from his wonderful team. I am starting a page with information on our experiences with this disease as well.
Anyway, I've decided that writing about it can be very therapeutic - especially during those long hospital stays. We have several more coming up. Mostly, I just wanted to let everyone know why my blogging has gone almost non-existent.
If you care to read up on our experiences, just click on the tab at the top of the page and if you care to help and donate please click the widget below.
This man is the love of my life and my best friend. This trial is difficult, but God does not give us anything we can't handle. Your prayers and well wishes are GREATLY appreciated as well.